“You matter because you are you. You matter to the last moment of your life, and
we will do all we can, not only to help you die peacefully, but to live until you
die.”
-Dame Cicely Mary Saunders
Founder of the modern day hospice movement.
Resources
Family Hospice Care provides links to the following sites to help our community
locate hospice care and end-of-life information. The organizations and web sites
listed will change periodically as the resources grow and change. Family Hospice
Care is not responsible for the content of these sites, nor does it make any endorsements
to the organizations.
Leading Age
LeadingAge is a community of nonprofit aging services providers and other mission-driven organizations serving older adults.Provider members of LeadingAge may be any mission-driven, voluntary, or government-sponsored organization providing housing or care for older adults. LeadingAge
provider membership offers an exclusive range of benefits that gives your organization tools, resources, and business intelligence.
https://leadingage.org/
https://leadingage.org/
California Hospice and Palliative Care Association
The California Hospice and Palliative Care Association advocates for those facing
life-threatening illnesses. They provide technical resources, monitor legislative
and regulatory activities, and work closely with other organizations that share
an interest in end of life care. They serve both California and Nevada.
www.calhospice.org
www.calhospice.org
Hospice Foundation of America
A not-for-profit organization assisting those who cope either personally or professionally
with terminal illness, death, and the process of grief.
www.hospicefoundation.org
www.hospicefoundation.org
Hospice and Palliative Nurses Association
The purpose of the HNPA is to exchange information, experiences, and ideas; to promote
understanding of the specialties of hospice and palliative nursing, and to study
and promote hospice and palliative nursing research.
www.hpna.org
www.hpna.org
POLST-Physician Orders for Life-Sustaining Treatment
The POLST is a form that states what kind of medical treatment patients want toward
the end of their lives. Printed on bright pink paper, and signed by both a doctor
and patient, POLST helps give seriously ill patients more control over their end-of-life
care.
www.capolst.org
www.capolst.org
The Centers for Medicare & Medicaid Services (CMS)
The Centers for Medicare & Medicaid Services (CMS) is a federal agency within the
U.S. Department of Health and Human Services. CMS runs the Medicare and Medicaid
programs - two national health care programs that benefit millions of Americans.
www.cms.hhs.gov
www.cms.hhs.gov
National Hospice and Palliative Care Organization
The goal of NHPCO is to educate about and advocate for the fundamental philosophy
and principles of hospice care to meet the unique needs of each terminally ill person
and his or her loved ones.
www.nhpco.org
www.nhpco.org
Mesothelioma Cancer Center
An advocacy group that assists patients and families suffering from asbestos-related
illnesses such as lung cancer and Mesothelioma. They provide many different types
of assistance including helping patients find the best local doctors, treatment
centers, and assistance for veterans in receiving VA benefits-all free of charge.
www.asbestos.com/
www.asbestos.com/